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Welcome to CARF, the leading patient advocacy group dedicated to helping individuals affected by scarring alopecia to live happy lives.

Latest News

Now Open! 2020 Conference Registration & Program Info

The conference planning committee and CARF staff are finalizing the conference program, securing our renown physicians, faculty and speakers, and recruiting sponsors and vendors. We're adding some new features for next year, including an offsite dinner and tour of Nashville, morning yoga for all levels, networking lunches, and expert physician panels with targeted questions and answers. For more information and to register, click here. If [...]

October 27th, 2019|

A Glimpse into Some Results from 4Part Survey Series

Thank you to everyone who participated in the survey series. We had over 300 members answering each of the four surveys and sharing input, ideas, and personal advice. The office is busy summarizing the information to build CARF’s future strategic plan, but we wanted to share just a few snippets of what we’ve learned so far. Survey participants were 93% female, with an average age [...]

October 23rd, 2019|

Acceptance of my Frontal Fibrosing Alopecia

Learning I have this crazy thing called frontal fibrosing alopecia (FFA) left me feeling both numb with grief yet mysteriously relieved. By the time I was diagnosed in the summer of 2016, I had already run the gamut of hair camouflage techniques and futile attempts to get my hair to start growing again. Extensive Google searches led me nowhere my heart and my head wanted [...]

October 23rd, 2019|
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